{"id":2841,"date":"2022-10-11T14:06:13","date_gmt":"2022-10-11T13:06:13","guid":{"rendered":"https:\/\/presse-express.dz\/?p=2841"},"modified":"2022-10-11T14:06:13","modified_gmt":"2022-10-11T13:06:13","slug":"hemophilie-importance-de-leducation-therapeutique-des-malades","status":"publish","type":"post","link":"https:\/\/presse-express.dz\/?p=2841&lang=fr","title":{"rendered":"H\u00e9mophilie: importance de l’\u00e9ducation th\u00e9rapeutique des malades"},"content":{"rendered":"
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ALGER – Des h\u00e9matologues et p\u00e9diatres ont mis l’accent, lundi \u00e0 Alger, sur l’importance de renforcer l’\u00e9ducation th\u00e9rapeutique chez les h\u00e9mophiles en vue de les pr\u00e9venir contre les h\u00e9morragies auxquelles ils sont expos\u00e9s lors des chutes ou de leurs activit\u00e9s quotidiennes.<\/strong><\/p>\n<\/div>\n

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Intervenant lors d’une rencontre sur le traitement et la pr\u00e9vention contre l’h\u00e9mophilie, des sp\u00e9cialistes ont mis en avant l’\u00e9ducation th\u00e9rapeutique en termes de prise en charge des malades, soulignant que la majorit\u00e9 des h\u00e9mophiles re\u00e7oivent le traitement \u00e0 domicile.<\/p>\n

L’\u00e9ducation th\u00e9rapeutique permet d’am\u00e9liorer la qualit\u00e9 de vie des h\u00e9mophiles et r\u00e9duit “la gravit\u00e9 de la maladie”, ont estim\u00e9 les participants, mettant en avant la n\u00e9cessit\u00e9 d’assigner cette mission \u00e0 une \u00e9quipe m\u00e9dicale pluridisciplinaire en attendant la codification de cette op\u00e9ration par le minist\u00e8re de la Sant\u00e9.<\/p>\n

Les scientifiques d\u00e9finissent l’h\u00e9mophilie comme maladie h\u00e9r\u00e9ditaire rare qui se transmet de la m\u00e8re aux enfants gar\u00e7ons dont le manque de prot\u00e9ines charg\u00e9e de la coagulation du sang en est le facteur principal ce qui entraine une h\u00e9morragie pouvant nuire aux membres et tissus. L’intensit\u00e9 de la maladie est d\u00e9finie en fonction de la quantit\u00e9 de prot\u00e9ine manquante.<\/strong><\/em><\/p><\/blockquote>\n

Pour sa part, le Chef de service H\u00e9matologie au CHU Issad Hassani de Beni Messous (Alger), Pr Salim Nekal a soulign\u00e9 que l’h\u00e9mophilie \u00e9tait class\u00e9e parmi les maladies rares qui pourrait se transformer en infirmit\u00e9 motrice, faute de diagnostic pr\u00e9coce ou d’une prise en charge convenable.<\/p>\n

Il a expliqu\u00e9 que, 1.564 cas de cette maladie ont \u00e9t\u00e9 recens\u00e9s jusqu’\u00e0 ce jour, et ils suivent\u00a0 le traitement au niveau de 17 services d’h\u00e9matologie ou de p\u00e9diatrie situ\u00e9s dans diverses \u00e9tablissements hospitaliers \u00e0 travers le pays.<\/p>\n

Il a rappel\u00e9 le guide \u00e9labor\u00e9 par le minist\u00e8re de la Sant\u00e9 pour accompagner ces patients et les prot\u00e9ger des h\u00e9morragies auxquelles ils sont expos\u00e9s au cours de leur vie quotidienne.<\/p>\n

Pour sa part, le chef de service de p\u00e9diatrie \u00e0 l’\u00e9tablissement hospitalo-universitaire de S\u00e9tif, Pr. Belkacem Bayoud, a \u00e9voqu\u00e9 le diagnostic pr\u00e9coce des cas et des sympt\u00f4mes apparents et non-apparents de la maladie, repr\u00e9sent\u00e9s par l’apparition de plaques bleues sur certains endroits et articulations du corps, de l’h\u00e9morragie qui se produisent dans certains organes, ainsi que diverses infections.<\/p>\n

A cet \u00e9gard, il a soulign\u00e9 les aspects de pr\u00e9vention et de sensibilisation des familles lors des op\u00e9rations de circoncision et de vaccination, qu’il faut r\u00e9aliser apr\u00e8s des analyses biologiques de l’enfant pour \u00e9viter les h\u00e9morragies et une meilleure prise en charge au cas o\u00f9 cela se produirait.<\/p>\n

Lors de leurs interventions au cours de cette rencontre, plusieurs sp\u00e9cialistes ont soulign\u00e9 la n\u00e9cessit\u00e9 d’organiser diverses activit\u00e9s au profit des personnes atteintes d’h\u00e9mophilie, dont le lancement d’applications \u00e9lectroniques \u00e0 m\u00eame de contribuer au renforcement de l’\u00e9ducation th\u00e9rapeutique et \u00e0 l’am\u00e9lioration de la qualit\u00e9 de vie des patients.<\/p>\n<\/div>\n

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ALGER – Des h\u00e9matologues et p\u00e9diatres ont mis l’accent, lundi \u00e0 Alger, sur l’importance de renforcer l’\u00e9ducation th\u00e9rapeutique chez les h\u00e9mophiles en vue de les pr\u00e9venir contre les h\u00e9morragies auxquelles ils sont expos\u00e9s lors des chutes ou de leurs activit\u00e9s quotidiennes. Intervenant lors d’une rencontre sur le traitement et la pr\u00e9vention contre l’h\u00e9mophilie, des sp\u00e9cialistes […]<\/p>\n","protected":false},"author":3,"featured_media":2842,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43,44],"tags":[],"class_list":{"0":"post-2841","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-actualites","8":"category-sante"},"yoast_head":"\nH\u00e9mophilie: importance de l'\u00e9ducation th\u00e9rapeutique des malades - Presse Express<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/presse-express.dz\/?p=2841&lang=fr\" \/>\n<meta property=\"og:locale\" content=\"ar_AR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"H\u00e9mophilie: importance de l'\u00e9ducation th\u00e9rapeutique des malades - Presse Express\" \/>\n<meta property=\"og:description\" content=\"ALGER – Des h\u00e9matologues et p\u00e9diatres ont mis l’accent, lundi \u00e0 Alger, sur l’importance de renforcer l’\u00e9ducation th\u00e9rapeutique chez les h\u00e9mophiles en vue de les pr\u00e9venir contre les h\u00e9morragies auxquelles ils sont expos\u00e9s lors des chutes ou de leurs activit\u00e9s quotidiennes. 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